A few weeks ago we (very excitedly) received our copy of "My Bendy Body" written by Michelle O'Sullivan. Michelle is an Australian occupational therapist that specialises in the Hypermobility Syndromes.
My Bendy Body is a picture book that talks about how living with joint hypermobility syndrome (or Ehlers-Danlos Syndrome) impacts on the lives of children. It does it in a way of explaining how even though "I" might not be able to do things like all other kids "I" can still do many of those things if we change them a little and "I" can have a rest. So it is not about the "I can't" but the "I can". Something that all children with special needs need.
The book is aimed at preschoolers and infant primary school children. It is a great way for these young children share about the condition when they don't have the words on how to explain it. It is a great resource for all children with Hypermobility Syndrome and Ehlers Danlos Syndrome to be able to share with their family, friends, preschools, schools and groups.
I recommend any parents, family member, teacher or friend who has a child that has a child that has been diagnosed with Joint Hypermobility Syndrome or Ehlers Danlos Syndrome to get a copy of this book so you can get a better understanding of how these conditions affects the life of these children. It is a fun and easy way to share with the world more about these conditions.
Copies of My Bendy Body can be purcahsed here
I have no affliation with this book. I just think it is a great resource for those experiencing life with children who have joint Hypermobility Syndrome and Ehlers Danlos Syndomre. Especially when these conditions are not very well known.