All about the simple things in life

All about the simple things in life

Category: BJHS/EDS

My Bendy Body – book review

My Bendy Body – book review

A few weeks ago we (very excitedly) received our copy of "My Bendy Body"  written by Michelle O'Sullivan. Michelle is an Australian occupational therapist that specialises in the Hypermobility Syndromes. My Bendy Body is a picture book that talks about how living with joint hypermobility syndrome (or […]

Maddy’s Quest for EDS

Maddy’s Quest for EDS

  Maddy is such an inspriational little girl. She is 9 years old and both her and her sister, Kayla (7) have Ehlers Danlos Syndrome (EDS), a rare connective tissue disorder. Maddy is on a quest to raise awareness about EDS so that people will […]